A 34-year-old woman shared heartbreaking photos of her emaciated body to create awareness about the rare genetic condition from which she is battling for so long, and that left her unable to eat. Read on to know the complete details about the rare genetic condition.
A 34-year-old woman shared heartbreaking photos of her emaciated body to create awareness about EDS
Emily Monk, a 34-year-old lady who lives in Telford, is suffering from a rare genetic condition Ehlers-Danlos Syndrome also known as EDS, and this disease is a group of conditions that affects connective tissue. Connective tissues are the significant supports of skin, tendons, ligaments, blood vessels, internal organs, and bones.
And this infectious disease left her body disabled, and now she is unable to eat and living on a nutrient-rich liquid that is through an injection into her veins.
She is currently weighing just 5th 7lbs. Emily shared how this EDS affected her job and broke down her marriage. And left Emily in a situation where she has nothing to do instead of suicide.
She shared heartbreaking photos of her condition and stated that “I was not known to this disease until I was diagnosed, but it took everything from me. I don’t know till when I am alive, but I want to create an awareness of the condition that has stolen my life.”
Emily also shared that, since my childhood, I was developing this disease in my body. I used to have joint pains in my shoulder and hip, weak digestive system, and keeping myself nourished when I was 14. But I was always determined to overcome all the adverse conditions in which life took me in.
She said, “She did everything, she graduated and got married too. But this diagnosis is known as EDS “Cost her everything.”